Nathan Pustka

Autism Light #157 is Nathan Pustka.

Nathan Pustka is a student from Spring, Texas. He is a musical savant who has autism. Nathan Pustka is an Autism Light for the gift he has in music and how utilizing that talent blesses others and may open the door for other people with autism to focus on music.

Nathan Putstka has perfect pitch and can play songs on the piano after he hears them on his iPod. Only 1 in 10,000 people have perfect pitch. He taught himself to play the piano and doesn't read music. Both of Nathan's parents are deaf.  Julie Hansen a music teacher said, "I've been a piano teacher for 15 years and I've never seen anybody like Nathan (Source)."

The following is a news story done on Nathan Pustka's talent in 2010 when he was 16 and attended Klein Collins High School. For more information on this visit Katie McCall's written report on this story.

The following is another news story done on Nathan Pustka's talent in 2009 when he was 15 and was attending Brenham State Supported Living Center. 

In January, 2012, the YouTube user scharlesdecker left this comment on the above video that demonstrates how Nathan Putstka's talents continue to inspire new people in the autism community who learn of his story.

As the father of two sons with autism, one non-verbal, I just wanted to say thanks. Your video was so inspirational. While most with autism are not savants like Nathan, everyone....regardless of their abilities has something to share in this world. Sometimes it's as simple as the change for the better that they make in their caregiver or the people who take the time to know them (scharlesdecker). 

Special thanks to Nathan Pustka for sharing his musical talent with the world. A piano teacher named Julie Hansen said it best, "The fascinating thing about Nathan is we really don't know what the limit is. It's just a matter of sitting down with him and just exploring (Source)." We expect to hear great things from Nathan Putstka's musical performance in the future. 

Autism Light honors diverse heroes to the world of autism.

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Dan, Carey, and Rob Tedesco

Autism Lights #156 are Dan, Carey, and Rob Tedesco.

Dan and Carey Tedesco

Rob Tedesco

The Tedesco's are from Shelton, Connecticut. Dan and Carey Tedesco are the parents of a son named Evan who has autism. Rob Tedesco is Evan's Uncle. In August, 2008 the trio founded a family business called HandHold Adpative to help provide mobile app needs for autism and special needs. Dan and Carey Tedesco and Rob Tedesco are Autism Lights because of the way in which HandHold Adaptive is meeting communication needs in the autism community.

HandHold Adpative has created several important apps that are available for the autism community. According to their website the mission of HandHoldAdaptive is to "'bridge the divide' between the special needs community and a dynamic world, by innovating technologies that make life easier for people with disabilities and their caregivers."

The following is a news story done about HandHold Adaptive's creation of the iPrompts App.

Carey Tedesco uses a mobile phone with her son Evan

HandHold Adpative has created the following Apps for mobile phones and the iPad that may be of interest to the autism community:

• Autism Track--their newest app is a journaling tool that allows caregivers of people with autism to track interventions, behaviors, and symptoms.
• iPrompts--their original app is a visual support tool that allows people with autism to communicate better. Wade Wingler of the INDATA Project with Easter Seals Crossroads in Indiana did a demonstration of iPrompts for the iPad in a video on YouTube. 

Dan Tedesco said the following about the potential importance of mobile apps to people with autism.

We believe that the autism community needs mobile apps to enable better integration in society. Managing anxieties, communication, data tracking, and ultimately real-time job coaching are all things that can be accomplished in discrete, non-stigmatizing, dynamic and adaptable ways by employing mobile devices (Rob Tedesco).

Partnerships: Handhold Adaptive has partnerships with Autism Speaks, Els for Autism, Southern Connecticut State University's Autism Center. In addition, some exciting new partnerships are being planned as well with some Ivy League schools.

Dan and Carey Tedesco came up with the ideas for their autism Apps because of needs they encountered during the every day care and education of their son Evan who has autism. Rob Tedesco writes,

Dan and Carey are inspired to create tools based on real-life needs in the household in the ordinary course of caring for Evan, who has autism, e.g., we need to track data more efficiently, so we invented Autism Track. We worked with our developers to prototype and test, and also secure grant funding. Under grants and research contracts, we work with universities to study efficacy and improve the apps.

Social Media: Dan and Carey Tedesco and HandHold Adaptive can be followed on the following social media areas:

• Facebook (iPrompts)
• Facebook (Dan Tedesco)
• YouTube (HandHold Adaptive)
• Twitter (HandHold Adaptive)
• Twitter (iPrompts)
• Twitter (Rob Tedesco)

Special thanks to Dan and Carey Tedesco and Rob Tedesco for creating a business that provides mobile technology apps that are making a difference for people with autism. We are grateful that the love they have for their son and nephew inspired them to share a resource with other parents and people with autism as well. If you liked this post you may wish to read the other Autism Light posts with the label iPad on them.

Autism Light honors diverse heroes to the world of autism.

Photo: The photo in this post are used with permission of the Tedesco Family.

This post went into syndication on Autisable.

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Hans Asperger

Autism Light #155 is Dr. Hans Asperger.

Today we journey to Austria where we meet a giant in autism history. He is the physician and researcher responsible for first diagnosing the form of autism that would become known as Asperger's Syndrome. While our hero did not live to see that the fruit of his research on autism would travel around the world and that in his honor his name would be used in a diagnosis of the form of autism he studied, during his day he was dedicated to being a light for autism and was motivated by a love for children who had high functioning autism.

Dr. Hans Asperger was a pediatrician and child psychologist from Austria who worked at the University Children's Hospital in Vienna. He was born near Vienna, Austria on February 18, 1906 and died on October 21, 1980. The form of autism known as Asperger's Syndrome was named posthumously after Hans Asperger. Hans Asperger is an Autism Light because his work brought awareness to the form of autism that would eventually be labeled Aspergers (after his death). Hans Asperger will be added posthumously to the Autism Light Memorial Roll today.

Family: Hans Asperger married in 1935 and had 5 children (Source). 

• Three of Hans Asperger's offspring took careers in agriculture and two became physicians (Source).
• Hans Asperger, Jr. who works in the agricultural field said, "My father always said, 'I love the children' (Source).  Mark Blaxil and Dam Olmsted wrote an article for Age of Autism where they discuss their experiences with meeting Hans Asperger, Jr. in August, 2008.
• Maria Asperger-Felder is a child psychiatrist in Switzerland who works with children with autism like her father did.

School: Hans Asperger and Sister Victorine had opened a school for children with autism near the end of World War II. Much of Hans Asperger's early work was destroyed when the school was destroyed by bombs near the end of the war. 

Research: During his lifetime Hans Asperger wrote over 300 publications of which a significant portion was based on his findings related to autism (Source). Hans Asperger provided the first definition in 1944 of what would later be called Aspergers by describing the condition as "a lack of empathy, little ability to form friendships, one-sided conversation, intense absorption in a special interest, and clumsy movements (Source)."  He also called his patients "Little Professors". A summary of an article he wrote in 1944 is at this link. After publishing this landmark study on autism the University of Vienna gave him a permanent tenured position.

The following is a video that Tony White did where he discusses what Hans Asperger said in his sentinel paper.

Quotations: Here are some beautiful quotations by Hans Asperger about autism:

• "Not everything that steps out of line, and thus 'abnormal', must necessarily be 'inferior' (1938) (Source).
• "It seems that for success in science or art, a dash of autism is essential" (Source).
• "Able autistic individuals can rise to eminent positions and perform with such outstanding success that one may even conclude that only such people are capable of certain achievements (1944) (Source).

Language Barriers: Because Hans Asperger did not write in the English language, it took many decades for his work to be translated and reach the mainstream of English speaking areas. A British researcher named Lorna Wing first coined the phrase "Aspergers Syndrome" in 1981 (Source).  By the 1990's Hans Asperger's work had been translated sufficiently enough to take root on an international level. 

Author: Hans Asperger's classic paper was translated and annotated and appears in the book Autism and Asperger Syndrome edited by Uta Frith in 1991.

International Asperger's Day: International Asperger's Day was held on February 18, 2012.  The annual observance is set to coincide with Hans Asperger's birthday. Kathie Harrington wrote a post at her blog on the observance of this day in 2012.

Social Media: A Facebook page has been set up on Hans Asperger that can be liked at this link.

Further Study: To read more biographical information about Hans Asperger visit these online websites.

• NNDB Page
• Wikipedia Page
• Wikia Page
• Whonamedit Page
• German Website on Autism Culture 

Hans Asperger will be remembered for bringing awareness to what is considered the high functioning side of autism or commonly called Aspergers. Today we honor Hans Asperger for his research on autism and helping point out the different expressions of autism. As someone has said, if you meet one person with autism you meet one person with autism. We remember Hans Asperger's light for autism in the month of his birthday and throughout the year.


Autism Light honors diverse heroes to the world of autism.


The text image in this post was created with Cool Text: Logo and Graphics Generator.

This post went into syndication on Autisable.

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Kendrick Brinson

Autism Light #154 is Kendrick Brinson. 

Kendrick with his lovely prom date (2011)

Kendrick Brinson is an 18 year old from Soledad, California located in Monterey, County. Kendrick has autism and demonstrated tremendous success as a student athlete in his high school career. Kendrick Brinson is an Autism Light because of the inspiration his accomplishments in high school provides to those associated with autism. His character continues to be forged in a notable way as a college student.

While Kendrick was nonverbal until the age of 7, he received intensive speech therapy that helped him.  The record of his academic achievements defy the expectations of many who knew him back when he was first diagnosed with autism at age 3. In 2011 Kendrick Brinson graduated from Soledad High School with a 3.67 GPA. In addition to participation in standard social events such as Prom, he was a critical part of his Varsity Basketball team. 

Basketball: Required by his parents to step out of his comfort zone and to take up the challenge of at least one club or sport during school, Kendrick selected basketball early on because of his interests and gifts in the sport. It's something that he is grateful he experienced, and he encourages other students with autism to "try something you've never done" while you are in school.  His record in basketball prior to his senior year is an example of discipline, growth, and achievements.

• In 5th grade he received the Male Student of the Year for his entire school district.
• In 7th grade he didn't make the basketball team, but he didn't give up on his goals.
• In 8th grade, he was on the basketball team and won the Most Improved Player.
• In 9th grade, he played center on the Freshman Basketball team and received the Coaches Award.
• In 10th grade, he moved to Monterey County, California and made the Varsity Basketball Team in his new school. He was one of only two Sophomores to make the Varsity team.
• In 11th grade, he was the starting center for the Varsity Basketball Team at Soledad High School and received the Defensive Player of the Year Award.  He was named in the Alverez Eagle Classic as the All Defensive Player. 

Senior Basketball Star: In his Senior Varsity Year in 2011, Kendrick Brinson averaged 18 points per game on offense and was was nicknamed the "BEAST" because of his tenacious defensive play. Fans use to chant "UNLEASH THE BEAST" when a tough defensive stop was needed. Kendrick received the Most Valuable Player Award that year and he was ranked #6 in the Mission Trails League. He was selected to play in the Monterey County All Star Basketball Tournament. Here is a Central Coast news video on Kendrick Brinson's achievements in high school in athletes, academics and social events. 

Basketball's Lessons: Autism Light asked Kendrick Brinson how basketball prepared him for life and this is what he said,

I think the most important thing I learned from playing basketball, was to always try to look outside of the box in certain situations. So often, people like me, with the autism diagnosis have such difficulty looking at situations from a different/more proactive perspective. Basketball taught me that even if you feel like your loosing the battle, you've actually won the fight to overcome symptoms of your negative self. Whether you win or lose, is irrelevant...You must give everything in life--100% (Kendrick Brinson).

Shared Dreams and Feelings: Kendrick Brinson offers the following perspective on the feelings and dreams of people with autism and in doing so demonstrates that what people with autism have in common with others is greater than any differences.

I don't mind having Autism, but I do mind being singled out and defined by it. Autism doesn't define me, because I want the same things every person at my age wants, to live my life, to be understood for who I am, to find love, have a rewarding career, and continue to do the best I can. Every person on this earth has something great to contribute. I'm no exception. People with autism are just like you. We want to be included, we want to know you get why we react to certain things, either good or bad, we want you to know we aren't stupid...We think differently but most of the times arrive at the same answer. Take the time to learn and educate yourselves. Trust me, it would make us ALL happier! (Kendrick Brinson).

Parents: Much of Kendrick Brinson's success is because of his parents involvement in his life. His mother Andria Brinson is a full-time autism advocate. You can read about her work at this news story by the Soledad Bee. Kendrick Brinson said, "I personally think that what made me so very successful in school was my mother and fathers ability to advocate for me, their continual support, and my innate drive to overcome my Autism obstacle."

College: Today Kendrick Brinson attends San Jose State University, where he is majoring in Accounting with an interest in Global Finance. He also has had the opportunity after high school to experience the thrill of working (and paying taxes).

Special thanks to Kendrick Brinson for being a light that other students with autism can follow. Kendrick has shown that significant achievements in academics, athletics, and social activities can be obtained by people with autism.

Autism Light honors diverse heroes to the world of autism.


Photo: The photo in this post is used with permission of Andria Brinson.

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Mark Yeager

Autism Light #153 is Dr. Mark Yeager.

Dr. Mark H. Yeager is from Smith County, Mississippi. He is often referred to as the "Father of the Mississippi Autism Movement." Viewed as the top authority on autism in the State of Mississippi, Mark Yeager has provided services to people with autism since 1975. "His experiences range from being a classroom teacher to program developer creating new and innovative based programs (Source)." Dr. Mark Yeager is an Autism Light for the dedication he has had for over 35 years to improving the quality of life for people with autism in Mississippi. The effectiveness of his work is an example to the autism field across the United States and world.

The following is a video of Dr. Mark Yeager speaking on "The Hidden Part of Autism" on May 5, 2010 at The Institute for Disability Studies at the University of Southern Mississippi.

Autism Light asked Dr. Mark Yeager how he felt we could best help improve the quality of life for those with autism. He shared the following:

I think that one of the most misinterpreted issues within the ASD community is that people with ASD prefer not to do many things.  This often leads to them being left out of so many opportunities.  My years of experience has taught me that it is not the lack of interest or desire but the lack of opportunity that keeps autistic people away from so much.  It is our collective responsibility to provide as many opportunities as possible for our autistic friends and family members so that they can enjoy participating in life with everyone else --Dr. Mark Yeager. 

Adjunct Professor: Dr. Mark Yeager is a 1998 graduate of the University of Southern Mississippi, where he earned his Ph.D. in Autism Spectrum Disorders. Dr. Mark Yeager serves as an adjunct professor at both the University of Southern Mississippi and William Carey University.  Dr. Mark Yeager created and taught the first classes in the state of Mississippi exclusively dedicated to autism (Source). He has also delivered autism lectures to the Minister of Education in India.

Autism Bill of Rights: One of the ways in which Dr. Mark Yeager's autism work has been felt outside of Mississippi is related to the Autism Bill of Rights.  He created the Autism Bill of Rights and the document can be viewed at this link.

Autism Camps: Mark Yeager also serves as the Camp Director for Autism Camps in Mississippi known as TEAAM'S Adventure Based Programs. The programs allow people with autism inclusive opportunities to experience a camp program.  In this past year 190 campers and 140 volunteers were involved in the Kamp Kaleidoscope and Camp Walapei at their Center Ridge Outpost.  The Center Ridge Outpost is about 6 miles south of Raleigh, Mississippi.  The website for more information on these Autism Camps is at www.autismcamps.org.

Yeager Group: Dr. Mark H. Yeager is co-founder of the Yeager Group. The Yeager Group provides "assessments, quality training, assistance in the classroom, teacher and family support, IEP recommendations, behavior programs, student counseling and more (Source)." If you are interested in their services contact them at The Yeager Group, PO Box 37, Mize, MS 39116 or through other channels listed on their website.

Social Media: You can follow Dr. Mark Yeager at the following social media areas.

• Facebook
• Twitter
• Google+

For more information on Dr. Mark Yeager vist his biography at this Website.  Special thanks to Dr. Mark Yeager for shining your light for over 35 years to improve the life of people with autism in Mississippi.

Autism Light honors diverse heroes to the world of autism.

Photo: The photo in this post is used with permission of Dr. Mark Yeager.

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Jason McElwain and Coach Jim Johnson

Autism Lights #150 are Jason McElwain and Coach Jim Johnson.

It's difficult to think of an event from years ago still being talked about on social media?  But search the name "Jason McElwain" on Twitter or Google+, especially this time of the year, and your likely to experience some shares, tears, and smiles about an event that happened in 2006. Jason McElwain is a graduate of Greece-Athena High School in Rochester, New York and Jim Johnson is the Varsity Boy's Basketball Coach for Greece-Athena High School. Jason McElwain, who has autism, and his Coach Jim Johnson are Autism Lights for bringing hope to the autism community. What started with an amazing 4 minutes at the end of a basketball game continues today as they shine a light for hope both on and off the court.

On February 15, 2006, with the game's outcome no longer in doubt, Coach Jim Johnson sent his high school basketball manager, Jason McElwain (J-Mac), in to play the final four minutes of the senior night game. What happened next would be an amazing feat for the most veteran player, but considering Jason McElwain has autism and was coming in cold off the bench to play his first ever minutes of competitive high school basketball, it is considered truly a miracle.   In just four minutes of game time, Jason McElwain dramatically scored six three-pointers and one two-pointer to score 20 points in the game and end up being the high scorer of the game. This event raised awareness for the capabilities of people with autism and inspired countless numbers of parents and people with autism to strive to reach their dreams. Embed here is one of the many news stories on J-Mac's game. This one was shared at the 2006 NBA Finals. The video shows how Jason McElwain's accomplishment gave hope to Terry and Kerri Connolly, whose son Eric has autism.

Honors: 

• The performance of Jason McElwain in this basketball game quickly made him a household name. Jason McElwain was listed #8 on the toptenz.net Top Ten list of people known to have autism (Source).
• Jason McElwain won a 2006 ESPY Award for the Best Moment in Sports that year.

Here is a news story recorded a year ago for the 5th anniversary of Jason McElwain's historic game that reveals how time has afforded both J-Mac and Coach Jim Johnson opportunities to continue to reach for their dreams.




Coach Jim Johnson Today: Coach Jim Johnson continues to coach the Boy's Varsity Basketball Team at Greece-Athena High School in Rochester, New York. He has been on the sidelines for 25 years and has over 335 wins. A complete biography is available at this link.  Jim Johnson also has become a published author and is a widely used professional speaker. His services have been utilized by corporations, educational institutions, religious institutions, and diverse organizations as a motivational trainer and speaker.  You may visit  his website to find out how you can book Coach Jim Johnson to fill your need for a great speaker. Coach Johnson will talk about the miracle of coaching Jason McElwain and also has other stories stemming from a career of 25 years of coaching young men in the game of basketball and life. His motto in his speaking is "Dreams Really Do Come True."

In 2011 Coach Jim Johnson published his book "A Coach and a Miracle" that talks about the Life Lessons that he learned by believing in an autistic boy named Jason McElwain. You may purchase the book at this website or click on the book to purchase it.

Jason McElwain Today: Today Jason McElwain works two jobs and when he has opportunity to speaks utilizes the motto: "Sometimes Dreams Do Come True".  J-Mac is also a volunteer assistant basketball coach for the Junior Varsity team at Greece-Athena High School, where he continues to work with Coach Jim Johnson. Several follow up articles have been written on Jason McElwain over the years, including Linder on Preps in 2007 and a Clay Travis article in 2009. Jason McElwain's dream is to become a college basketball coach.

Movie: The rights were sold long ago to make a movie on the life story of Jason McElwain, but there is no timetable for its production. Magic Johnson is going to be a co-producer of the film. Maybe they can get Kevin Costner to play Coach Jim Johnson and Luke Schroeder to play Jason McElwain.

Social Media: Jason McElwain has a Wikipedia page you can visit and also has a Facebook page.

Special thanks to Jason McElwain and Coach Jim Johnson for bringing a moment in sports that we can replay over and over whenever we need to find our dreams again. I think the reason this story has touched so many people's lives is that parents are often told to give up on their dreams when they have a child with autism. Jason McElwain's story reminds us that dreams for our children with autism don't have to end even if the take a different road. Those dreams may still be reached in a manner that goes beyond our wildest imaginations.

Autism Light honors diverse heroes to the world of autism.


Photo: The photos in this post are used with permission of Jim Johnson.

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Iditarod Trail Sled Dog Race Mushers

Autism Light #149 is the Iditarod Trail Sled Dog Race Mushers.

The Iditarod Trail Sled Dog Race is an annual sporting event that is one of the most popular in Alaska. The great race coves over 1,000 miles in sometimes sub-zero or blizzard conditions from Anchorage to Nome, Alaska. It takes 9-15 days for participants (called mushers) to complete as they drive teams of about 12 dogs. The Iditarod Race mushers are an Autism Light because in 2010 they helped provide $15,000 in support to make it possible for a boy with autism, Logan Erickson, to receive an autism service dog.

Logan Erickson is a 10 year old boy with autism who is chiefly nonverbal. He has been a fan of the Iditarod Race when he experienced it coming through Unalakleet, Alaska. Dee Dee Jonrowe is a musher and family friend of the Erickson's. Logan spoke his first word in seven years when he said, "Miyagi", the name of one of Dee Dee Jonrowe's race dogs. Dee Dee Jonrowe and other mushers of the Iditarod Race decided to take up Logan's cause and in 2010 donated almost $15,000 to help pay the expenses to bring an autism service dog to Logan Erickson.

Juke Erickson is the name of the yellow labrador dog who now lives in Unalakleet, Alaska with the Erickson family, thanks to the generosity of the Iditarod Race mushers. He has been trained by the 4 Paws for Ability organization to be an autism service dog for Logan Erickson. Juke is trained to find Logan in the event that he wanders, as children with autism do. Embeded here is part 2 from a series on the story of Juke Erickson. Part 2 covers the Iditarod musher's role in making this all possible.


 

You can watch Part 1 and Part 3 of the video series on Juke Erickson if you are interested in more information on this lovely story. 4 Paws for Ability completely trained Juke to be able to provide autism service. In the video when it speaks of Juke being trained by the Erickson family, it refers to the steps they took to help Juke apply his new skills specifically to the service of Logan Erickson. 

For more information on the Iditarod Trail Sled Dog Race visit these websites.

• Official Website
• Wikipedia

Special thanks to the Iditarod Trail Dog Sled Race Mushers for being an Autism Light and helping bring Juke Erickson to Alaska. The Mushers become the first Autism Light from the State of Alaska. If you liked this post you may want to read about the other Autism Lights who have the label, "Animal".

Autism Light honors diverse heroes to the world of autism.

Photo: The photo in this post was acquired from the Wikipedia Commons.

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Mike Frandsen

Autism Light #148 is Coach Mike Frandsen.

Mike Frandsen is a coach. But he presides over a unique team that doesn't measure their success in wins and losses. You see he is not the kind of coach you'd find working in loud arenas and under the bright lights.  Instead he devotes his time to individually coaching people with autism to reach their next goal. Mike Frandsen offers in-home tutoring and therapeutic services in the Bethesda, Maryland and Washington D.C. area geared to improve the skills of children and adults with autism in academics, social skills, sports, and life skills. Coach Mike Frandsen is an Autism Light because of the valuable help he gives to those impacted by autism.

Authentic Happiness: When Autism Light asked Coach Mike what made him want to be an Autism Coach, he said, "I believe children with autism have great potential to learn. Autism is also increasing faster than most other disabilities, so the need is there. I like the unfiltered honesty and authenticity of the kids. I like to answer kids' questions about how the world works, help them learn how to make friends, and develop a sense of humor."

Coach Mike Frandsen speaks affectionately about his work:

How could you not enjoy reading books with children, running play dates, taking kids swimming, sledding or jumping on a trampoline, coaching them in soccer, and using puppets to make them laugh? How could you not like answering their questions about how the world works? How could you not get a tremendous amount of authentic happiness from teaching a child to multiply, divide, and do word problems when at one point he couldn't add two plus two? (Source)

To read more about Coach Mike Frandsen's love for his work read an online article at the  examiner.com.

Education: Mike Frandsen earned his MBA from American University and has an MS in Education and Graduate Certificate in Autism and other Pervasive Developmental Disorders from John Hopkins University.

Methodology: While most of our Autism Lights who provide therapy do so either through the principles of Applied Behavioral Analysis (ABA) or through DIR/Floortime, Mike Frandsen uses an eclectic approach. On his website he writes:

I believe a combination of ABA and DIR methods is optimal because ABA provides structure and repetitive learning based on behavioral objectives, while the DIR model focuses on relationships and interests, and teaches skills based on emotional development. Children with autism need a combination and balance of both structure and meaningfulness when they learn (Source).

Advice to Parents: Coach Mike offered this advice to Autism Light for all parents of children with autism:

Find out what your kids are most interested in and build around those things. Don't focus on the past or the future, but take things day by day. Don't set limits, but accept your kids as they are. Build friendships between your kids and their peers, and between yourselves and other parents.

Website: There are several websites for additional information on Coach Mike's life and work. would

• Official Website
• Autism articles at the Examiner.com 
• Mike's Blog 
• Mike's Photography Website

Social Media: You can follow Coach Mike's work and life at the following social media areas.

• YouTube
• Facebook

Kidney Transplant: Coach Mike has a Kidney disease and after a long pursuit of a suitable kidney donor, he received a transplant of a kidney on November 1, 2012. He is doing well in his recovery and hopes to return to his work in January, 2013.

Special thanks to Coach Mike Frandsen for being an Autism Light. The autism community is cheering and pulling for you to win your battle with kidney disease. You are awesome!

Autism Light honors diverse heroes to the world of autism.

Photo: The photo in this post is used with permission of Mike Frandsen.

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Nora Baladerian

Autism Light #147 is Dr. Nora Baladerian.

One of the constant worries that parents have is keeping their children safe every day in every way. While the challenge impacts all parents, it weighs especially heavily on those who have children with disabilities, such as autism. According to Chantal Sicile-Kara, "those who specialize in the field of abuse & disability believe that for both children and adults, increased victimization is more likely 10 times the rate than for those without disabilities (Source)."  Today's Autism Light is a courageous light who has spent 40 years in an emotionally charged field, to which she has made priceless contributions with her outstanding professional expertise. 

Dr. Nora Baladerian, Ph.D lives in Los Angeles, California. Dr. Nora Baladerian is the Director of the Disability and Abuse Project in Los Angeles. She is a licensed psychologist who also has her own private practice.  Dr. Nora Baladerian is an Autism Light because of the key roles she has had in the field of sexual abuse of the disabled, including making a difference in areas of prevention and training, healing and therapy, and forensics and justice. To find out more information beyond what is mentioned here you may wish to view Dr. Nora Baladerian's complete online resume found in a section of her professional website.  

Dr. Nora Baladerian began her journey that has led to her life's work in 1972 when as a sexuality related counselor one of her clients revealed they were an incest victim. She recounts how she found out there was a need in this area:

I had taken all the educational courses I could at UCLA and USC under Regional Center about people with developmental disabilities when I worked there...none mentioned anything about abuse, crime victimization, sexual assault. I figured where there was one, there were many. I set out to learn all I could about crime victims with disabilities, but there was nothing, literally, that I found at that time. I began to attend any child abuse seminar/workshop/class/meeting that I could all the while asking, 'how does what you are teaching relate to kids/adults with disabilities?" No answers."  

Dr. Nora Baladerian then set out to learn all she could about sexual assault. She is a Certified Sex Educator, Certified Sex Therapist and  founding member of the California Committee on Sexuality and Developmental Disabilities. Through her gifts and passion to never stop learning, she has become a leading expert in the field of sexual abuse of people with developmental disabilities.

Conferences: Dr. Nora Baladerian has given presentations at numerous important conferences over the years. She convened 10 national/international conferences on abuse and disability from 1986 to 2005, plus in 2005 held the first professional online conference on the topic. She put these first 7 conferences on with no outside funding but the last 3 she had the support of the Arc of Riverside County, the U.S. Department of Justice Office for Victims of Crime, and the California Governor's Office under the Children's Justice Act. A partial list of those conferences can be found on this website. 

And there is a very special free opportunity coming soon to hear Dr. Nora Baladerian give an online presentation. 

On Saturday, February 11, 2012 from 8:15-9:45 Pacific Time, Dr. Nora Baladerian will give a free online presentation on "How Can Parents Reduce the Risk of Sexual Abuse of Their Child or Young Adult?" as part of the Autism Safety and Crisis Prevention Conference being presented by the Autism College and the National Autism Association (NAA) with sponsorship by The Social Express.  Go to this link to register today.

National Crime Victims Service Award (2008):  The Attorney General of the United States presented Dr. Nora Baladerian with the National Crime Victims Service Award in 2008, recognizing her pioneering work on behalf of persons with disabilities and in the furtherance of the mission of the Office for Victims of Crime of the U.S. Department of Justice. A list of other recent awards and recognition that Dr. Nora Baladerian has received is at this website. 

Disability and Abuse Project: Dr. Nora Baladerian has served as the Director of the Disability and Abuse Project since 1991. The mission of The Disability and Abuse Project very much mirrors the three pronged approach of prevention, healing, and justice that Dr. Nora Baladerian has taken with her career.  According to their website, the mission of the Disability and Abuse Project is "to identify ways to reduce the risk of abuse, to promote healing for victims, and to seek justice for those who have been victimized."  You can find out more information about the work of this organization at www.disabilityandabuse.org. 

Prevention: Autism Light asked Dr. Nora Baladerian to share some practical things that parents could do to prevent abuse of their children with autism. Here are five action steps.

1. Communicate with children what sexual abuse is.
2. Ask children to use their sixth sense around people, and to share with them (parents) any "weird words or behavior" by adults or other kids.
3. Work with the child to interpret behaviors and determine if something inappropriate is taking place such as grooming.  
4. Believe the child if they share something has happened to them.
5. Take immediate action as parents in the situation. 

Author: Dr. Nora Baladerian has written several books/guidebooks for the field of sexual abuse of the disabled. You may view them and order them from the Disability and Abuse Project of Spectrum Institute at this website. You may also view her author page on Amazon for additional sources for some of her books.

In addition, she developed two law enforcement training videos with the ARC of Riverside County. One was for training first responders and the other for how to conduct the forensic interview with children and adults with intellectual disabilities. These training videos are available free from the Office for Victims of Crime of the U.S. Department of Justice.

Social Media: You can follow Dr. Nora Baladerian's work at the following social media areas:

• Facebook
• Google+

Special thanks to Dr. Nora Baladerian for being a leader in the prevention and healing of sexual abuse on those with autism. I work as a Research Analyst and Webmaster for Prevent Child Abuse Michigan. It is my experience both as a parent of a child with autism and as one working in the field of abuse prevention that Dr. Nora Baladerian's specialization and expertise is very much needed today. 

Autism Light honors diverse heroes to the world of autism.

Photo: The photo in this post is used with the permission of Dr. Nora Baladerian. 

This post went into syndication at Autisable.

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Ivan and Charika Corea

Autism Lights #146 are Ivan and Charika Corea.

Charin Corea

Ivan and Charika Corea are from London, England in the United Kingdom. Their teenage son Charin has autism and inspired them to become autism advocates. They are responsible for launching Autism Awareness Year in the UK in 2002 and founding Autism Sunday, which has grown into an international observance of autism awareness in the religious faith community. Ivan and Charika Corea are Autism Lights for their influential advocacy for autism. Their groundbreaking autism awareness work has not always been easy, but with hearts of true heroes they are compelled to fight for those that have no voice.

Ivan Corea wrote this about Autism Sunday: 'We want to thank God for the life of our son Charin. He is a wonderful son and has been such a blessing. Charin made me get out of my comfort zone and campaign on autism. He is the inspiration behind Autism Sunday. We have done all of this - not for money - but for love. Autism Sunday has become a global event because it comes from the heart - it's all about love.'

Autism Sunday:  2012 will be the 10th anniversary of Autism Sunday. It also known as the International Day of Prayer for Autism & Asperger's Syndrome.  This year it will be observed on Sunday, February 12, 2012. Cathedrals, churches, and religious organizations are being encouraged to remember in their worship the over 67 million people worldwide who are living with autism. In concert with Autism Sunday there will be a Autism Sunday 2012 Twitter Storm. People are encouraged to use the hashtag #autismsunday when they tweet on Twitter during February 12, 2012.

Here is a video featuring a poem by Janice Cox and a song by Kirk Franklin from the worship service in London for Autism Sunday in 2010. Families are being encouraged to upload their personal autism videos like this one on YouTube to mark Autism Sunday 2012.

Supporters of Autism Sunday:  Hundreds of organizations and dozens of dignitaries in the United Kingdom are backing Autism Sunday. According to the press release on the event sent to Autism Light, "Among those who have wished Autism Sunday well are HRH Prince William and HRH Prince Harry, His Holiness the Pope, Sir Cliff Richard, Pastor Rick Warren, Deputy British Prime Minister Nick Clegg, Leader of the Opposition Ed Miliband, the Bishop of London Rt.Rev Richard Chartres and the Archbishop of York, Rt. Rev. Dr. John Sentamu." British Prime Minister David Cameron also is supportive of the initiative.

For more information about Autism Sunday visits these websites and social media areas:

• Autism Sunday Official Website
• Autism Sunday Wikipedia page
• Autism Sunday on Twitter
• Autism Sunday on Facebook
• Autism Sunday Channel on YouTube

UK Autism Foundation: The UK Autism Foundation is a charity for autism in the United Kingdom. Ivan Corea continues to lead the work of the foundation that he started. The UK Autism Foundation has information about their work on their website.

The following is Ivan Corea speaking about the UK Autism Foundation's mission of encouraging help for the poor who have children with autism.

Special thanks to Ivan and Charika Corea for being Autism Lights. The autism community is very blessed to have their leadership in a project that calls us to pray and ask God to help give mercy in dealing with autism. Autism Sunday is needed now more than ever as autism is impacting millions of more people now than could have ever been imagined on that first Autism Sunday ten years ago.

Autism Light honors diverse heroes to the world of autism.

Photo: The photos in this post are used with the permission of Ivan Corea.

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Cathy Dionne

Autism Light #145 is Cathy Dionne.

Cathy Dionne is the Director of Programs and Administration for the Autism Society of Maine, located in Winthrop, Maine. Cathy has worked for the Autism Society of Maine since 1997. Cathy Dionne is an Autism Light for her years of service to provide programs that help meet the needs of those with autism in Maine and those who care about them.

Cathy Dionne said even though there's still "almost that pity look" when people hear a child has autism she has this message for parents.

Autism is very treatable. There is a lot of hope out there. There's a lot of services out there too. There are a lot of people who care about these children and adults (Source).

Over the past several years The State of Maine has been either #2 or #3 on the list for the highest prevalence of autism rates in the United States, based on percentage of population. The programs and services that Cathy Dionne provides through the Autism Society of Maine are a potential blessing to the over 2,500 families in Maine who have children with autism. The Autism Society of Maine is also able to assist with the needs of adults with autism as well. The following is a PBS interview with Cathy Dionne where she describes the Autism Society of Maine's programs for autism.

Watch Autism Society of Maine on PBS. See more from Making Our Way: Autism.
In the above video Cathy Dionne mentions three important services that the Autism Society of Maine does for autism. They are as follows:

1. Lending Library--Over 900 media materials are available and they can be shipped out upon request.
2. Autism Information Specialist--This allows people to get referrals for local specialists that they can talk directly with about autism related needs.
3. Summer Camp--This is a free Summer Camp for children in Maine who have autism.

Cathy Dionne explains about autism in the following video for Autism Spectrum Disorder - Take 10 by Maine Parenting Federation.

Social Media: You can find Cathy Dionne on LinkedIn.

Special thanks to Cathy Dionne for the work she is doing to reach the people in the State of Maine on behalf of Autism. It is a well deserved recognition that she is the first Autism Light from the State of Maine. 

Autism Light honors diverse heroes to the world of autism.

Photo: The photo in this post is used with permission of Cathy Dionne. 

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Camille Proctor

Autism Light #144 is Camille Proctor.

The signature line on Camille Proctor's email says, "Autism Doesn't Discriminate!" Behind the tagline exists a warrior mother who is keeping a promise to remind others that help for autism doesn't have to discriminate either.

Ari Joseph

Camille Proctor lives in Atlanta, Georgia. She is a self-employed business consultant and works full-time as the Director of The Color of Autism Foundation. Camille's son Ari Joseph has autism. Camille Proctor is an Autism Light because of the understanding and awareness she is bringing to autism within the African American community.

Camille Proctor's contribution to autism includes being the director of The Color of Autism Foundation, which she founded in 2009. In her role as the director she receives many opportunities to help people by listening to their story and shining a light on positive options that may fit various situations. The website for the foundation is at www.thecolorofautism.org. If you would like to assist the foundation with its work you can donate at www.thecolorofautism.org/#!donate.  On The Color of Autism website Camille Proctor shares this about the beginning of her journey with autism:

I was forced to leave my career and care for my son living off my savings and retirement (which I would do all over again, if I had to). As I made my journey, I didn't find very many organizations that spoke specifically to me an African American parent raising an African American Male with ASD. I noticed their were huge disparities in at risk communities. Even worse many misdiagnosed and undiagnosed children in at risk communities end up in the criminal justice system each year.  I made a promise that once I got a handle on our situation, I would help others (Source).

Advice to Parents:  Camille Proctor told Autism Light that she feels parents of special needs children need "to build a strong foundation. They also need to be able to express themselves, because sometimes things become overwhelming." She encourages parents to seek out professional counseling if they develop anxiety.

Autism in African American Community: Camille Proctor said this to Autism Light about the unique needs related to autism in the African American community.

It is important for the African American community to understand how critical early intervention is. Autism is not isolated to whites and it's not behavioral. Autism is not a death sentence, it's a manageable disorder for many. With early intervention, your child could live a very amazing life! African Americans have to get over the stigma and fears of all things neurological and physiological. African Americans need to get a better understanding of what the autism scale is so they can better advocate for their child.

Movie: Camille Proctor is currently working on a film called "Screaming in Silence: Autism" with filmmaker Sonya Dunn (Source). The autism community looks forward to the release of this film in the future. Here is a trailer to the film.

Social Media: You can follow The Color of Autism on Facebook and on YouTube.

Further Reading: A very helpful news article was written on Camille Proctor by the Defenders Online in September, 2011.  Camille proctor was also mentioned this article by Jennifer Orgunsola about Autism in the Black Community.

If there is one thing we can all agree on with certainty about autism it is that it effects families of diverse demographics without discrimination. In order to fight an enemy as ambitious as autism it calls for advocates whose lives and backgrounds are as diverse as the families that are impacted by autism.  Camille Proctor has the passion and capacity to shine a light for autism awareness within her African American community, and the rays of her bright light is a blessing to the entire autism community.

Whoopi Goldberg said, "We're here for a reason. I believe a bit of the reason is to throw little torches out to lead people through the dark (Source)."  Camille Proctor is doing just that with her passion to help those impacted by autism in the African American community. Special thanks to Camille Proctor for being a light for autism. If you liked this post you may wish to read the other posts on the Autism Light blog with the Label "African American".

Autism Light honors diverse heroes to the world of autism.


Photo: The photos in this post are used with the permission of Camille Proctor. 

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Jim Weiss

Autism Light #143 is Jim Weiss. 

We all have a story to tell. People with autism have amazing stories inside them, but they sometimes need some extra help to be able to share them with the world. Today's Autism Light is a world famous storyteller who is hosting a fundraiser to help a family struggling with autism to write a new and wonderful story for their daughter.

Jim Weiss is from Charlottesville, Virginia. He has over 25 years experience as a children's storyteller and has received international acclaim. Tomorrow on Saturday, February 4, 2012, he will be in Dedham, Maine to host a fundraiser to help with the cost of autism therapy for a girl named Emma Stanley. Jim Weiss is an Autism Light for the way he is helping Emma's family raise funds to be able to write a beautiful next chapter in Emma's story.

Emma Stanley

Fundraiser for Emma Stanley:  Jim Weiss is hosting a fundraiser to help defray some of the high costs of autism therapy for Emma Stanley on Saturday, February 4, 2012 from 1:00-4:00 p.m. at The Lucerne Inn in Dedham, Maine. A website at http://storiesforemma.weebly.com/. has been created that explains all the details about the fundraiser. There is also a website called "Emma's Dreams" in which you can follow Emma's story and journey with autism. One of the therapies they are seeking to raise funds for on Emma's behalf is the Son-Rise Program from the Autism Treatment Center of America.

Emma's mother, Ellen Stanley told Autism Light that Jim Weiss is a legend in their home and they listen to him all the time. Ellen conveyed her utmost gratitude to Jim Weiss for helping her family in this way. She said,

For a complete stranger, a world renowned Storyteller to offer to do a fundraiser for us, well, it gives us hope. We feel like someone cares. It gives us the strength to keep on trying.

Great Hall Productions: Jim Weiss and his wife Randy started Great Hall Productions in 1989 "to bring to life for children the greatest stories from classic literature and history (Source)." Great Hall Productions has an excellent website at www.greathall.com with a variety of information about Jim Weiss' life and illustrious career as a Storyteller.

According to his website, "Jim travels extensively throughout The United States, giving live performances at stores, libraries, schools and community events. He has hosted and starred in a PBS television pilot that won a Northern California Emmy for "Best Children's Show," and has even performed at The White House Annual Easter Event."

However, if you are not able to hear Jim Weiss in person you can order one of his many recordings at this website. Here is a video of Jim Weiss being interviewed about the art of storytelling as part of a Home School Spotlight.

Social Media: You can follow the stories of Jim Weiss on his Facebook page.
Wikipedia: Jim Weiss also has a Wikipedia page.

The Autism Light blog is a growing collection of stories that each take diverse paths to meet in some way at the intersection of autism and hope. Special thanks to Jim Weiss for showing us the value of our story in life. Jim Weiss is truly an Autism Light for the help he is providing the Stanley family and little Emma as they journey with autism.

Autism Light honors diverse heroes to the world of autism.

Photo: The photos of Jim Weiss in this post are used with permission of Randy Weiss. The photo of Emma Stanley is used with permission of Ellen Stanley.

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